22 Jun SWHR is committed to ensuring tha
SWHR is committed to ensuring that women’s health remains a high priority on the national
agenda, that sex differences become more widely recognized as vital to healthcare treatment
options, and to advocating for increased funding for related research. Both the size of SWHR’s
staff and the roster of volunteer leaders have grown over time to assist in these efforts. Medical,
Summary
nursing, research, and scientific experts from a wide range of disciplines have been involved
with SWHR’s advocacy and communications outreach. Staff can now call on OSSD Council
officers and members, current and past members of SWHR’s networks, authors of chapters
in the Savvy Women Patient, and presenters from past SWHR conferences, as well as board
members for the medical and technical knowledge that undergirds the organization’s advocacy
and communications efforts. As we enter the second decade of the 21st century, SWHR will
continue to partner with the widest possible range of healthcare providers and policy makers to
gather evidence-based knowledge and then communicate it to Congress, the scientific research
community, and to healthcare providers and the public.
Summary
The Society for Women’s Health Research (SWHR) is a nonprofit advocacy organization
now recognized as the thought leader in research on sex differences. It was founded 20 years
ago and remains dedicated to improving women’s health through advocacy, education, and
research. SWHR credits its original advocacy and communications strategies coupled with the
inclusion of a mix of healthcare providers and policy makers dedicated to improving women’s
health with its ability to:
…
Change the way research is conducted in the United States.
…
Force the inclusion of women and minorities in medical research.
…
Alter how scientists now look at the different ways health and disease affect men and
women and the reasons why.
Beginning with a request that the GAO evaluate NIH policies and practices regarding the
inclusion of women and minorities in clinical trials, SWHR has for the last 20 years sought
solid evidence to make its points regarding women’s health and research. In addition to documenting
and communicating a variety of these issues, SWHR’s advocacy and communications
efforts have extended beyond the traditional lobbying of legislators and regulators to include
education and continuous communications with federal legislators and their staff; scientists
employed by the federal government, academia and industry; and the public.
As SWHR forced changes at other federal agencies, including the FDA, the volunteer
organization morphed into a professionally run nonprofit led by current President and CEO,
Phyllis M. Greenberger, MSW. Under Ms. Greenberger, SWHR was able to represent a
broad spectrum of healthcare researchers, providers, and policy makers to succeed with
governmental and congressional entities, culminating in the establishment of the national
WHRC, which now includes over 600 advocates from a wide range of academic, medical,
and scientific institutions as well as health-related associations and organizations to cooperatively
encourage coordination and funding for women’s health research.
SWHR’s hard-won successes related to the inclusion of women in clinical trials confirmed its
belief that in matters of health and disease, men and women are different, and SWHR initiated
Chapter 14 The Society for Women’s Health Research
advocacy and communications efforts within the scientific community to convince scientists
they needed to design studies to explain such differences. SWHR pushed for independent, unbiased
validation of research on sex differences, hosted interdisciplinary conferences on sex differentness
in biology, and successfully sought funding for novel interdisciplinary sex differences
research. In 2006, SWHR founded the OSSD to promote the field of sex and gender differences
research by facilitating interdisciplinary communication and collaboration among scientists and
clinicians of diverse backgrounds. SWHR also created the SWHR Isis Fund for Sex-Based Biology
Research to promote scientific communications and collaborations through interdisciplinary
networks focusing on distinct areas of study. The annual conference, “What a Difference an X
Makes: The State of Women’s Health Research,” is SWHR’s annual scientific conference that
brings together leading researchers, clinicians, physicians, and nonprofit professionals to share
new findings and groundbreaking studies in sex difference research.
SWHR’s other advocacy and communications efforts within the scientific community
included analyzing sex differences research at the NIH, which resulted in several of the NIH
institutes recognizing the need for sex differences research and implementing programs to fund
research on sex differences.
SWHR has made great inroads in championing women’s health research and the scientific
study of sex differences. Those who fund biomedical research have become interested in sex
as a biological variable, and researchers have found sex differences existing throughout the
human body.
Finally, SWHR has and maintains extensive advocacy and communications efforts with
the public. Its first major effort of this type was the “Women Can Do” campaign to educate
and encourage more women to become involved in medical research. SWHR’s Alliance for
Women in Clinical Research continues to educate women about medical research and ways
they can participate. SWHR also conducts several other consumer education and communications
campaigns on topics related to women’s health, conducts media briefings and roundtables,
and holds workshops for clinicians. The Savvy Woman Patient: How and Why Sex
Differences Affect Your Health was published by SWHR in 2006 and was the first consumer
book to discuss sex differences. SWHR’s communications efforts also emphasize that women
need to become advocates for themselves and their families by working with their healthcare
providers in making healthcare-related decisions. SWHR’s Web site, educational programs,
and materials also serve as resources for healthcare prac
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